On Saturday, June 13th, 2009, The Disability Opportunity Fund and St. Mary’s Healthcare System for Children held a Parent Advocay workshop a the St. Mary’s facility in Queens. Also present was a financial counselor from Mass Mutual who delivered a comprehensive programs on Special Needs Financial Planning.
This one day workshop focused on learning about entitlements, advocacy with school and healthcare professionals, legislative advocacy and financial and estate planning to address transitioning concerns. Participants played a pivotal role in the development of a standardized curriculum for other parents of medically fragile children.
The parents, along with the group moderators will develop a council that creates a curriculum which will be circulated to others parent groups.
Several additional workshops will be held in the Spring 2010. Please check back for information or CONTACT US if you would like to be placed on the mailing list.